I have quite a few drafts or ideas that I'd started writing, but I haven't really published anything for a while.
Well, let me update you on our grief journey and life in general. Babies are sooo busy and truly a great distraction. It was a huge adjustment having Madeline and the first few weeks were really difficult, but as she came to be a person in her own right to me and not just a baby that couldn't replace the child we lost, as I came to love her and opened my heart to her and her place in our family, that all stopped mattering. It was no longer about how she wasn't Max and I could let myself love her and not feel guilty because I learned that they were mutually exclusive people. I stopped feeling guilty about her having a place in our family and life got easier, for a while.
As things started to slow down and the business of babies and sleepless nights ebbed away, I often found myself really angry. I finally termed it 'hulk smash mad' (ya, I hang out with a 5 year old a lot). Even my husband was noticing and pointing this out, the littlest thing could set me off. Something so minute could go wrong and I would react like it was the end of the world. I started to realize that I was really mad, really reaLLY REALLY MAD that I had these two beautiful children to raise and not my third.... (or really, second child). How do 3 babies add up to 2 children? It's just not fair.
So ok, I'm mad and that seems pretty normal given the situation.
All of this is coming along as Oliver is starting to get very articulate about his thoughts too. Between Oliver's questions about death and my anger and this sense that 'this is our life now' and I didn't quite know where or how we were supposed to go on.... I realized I might need some help dealing with this.
I got myself in to see a counselor who I had seen many years before, I got her up to date on my history and explained that I thought we might need some help dealing with our grief. She was so wonderful to talk to and she reassured me that Oliver would be fine and that with my support and understanding he didn't need to see someone himself. She gave me ideas about how to talk to him and coax things out of him without leading him on or putting ideas in his head. Simply to keep doing what I was doing really, let him talk, if he brings something up ask him how he feels about that, if he's worrying about it and reassure him.
One of the most interesting things that came out of seeing her was that she thought I was doing ok with the grief, she was more worried about this sense of 'what now?' that I had. She started to talk to me about post traumatic stress disorder... I tried to laugh it off, I mean... I didn't go to war! But the more we talked about it the more I realized that she was right and I've since heard a number of friends who lost babies admit that they too were diagnosed with PTSD. Awareness is half the battle, learning to relax... there is no imminent danger to myself or my children, nothing outside of the norm right now. I guess it's about finding a new normal and learning to settle into it, easier said than done.
So after a few sessions talking about that I knew that I just needed to spend time thinking about it and finding ways to allow myself to relax and enjoy life. I was still struggling with the anger, but who or what was it directed at? This counselor was so patient and just let me talk it all out, she would pick up on the smallest thing I said and lead me down the right path. Maybe it's just easier to see when you aren't so close to the situation. Well, I had another big insight....the anger is at myself. I'm mad at myself for being frustrated at the kids, I'm mad at myself for not doing well enough as a mother. I'm mad at myself for not being able to grow and keep Max safe and healthy. I want to be able to make up for not being able to parent all three of my kids, therefor I should be giving %150 to each of the two that I have here. I'm not good enough, I'm not doing well enough.... I realize that that won't bring Max back, but maybe this was my way of punishing myself or trying to make myself live up to being their mother.
I have been trying to hold on to everything so tight, because I know that I can't control anything really, but maybe if I just do better, be more.......
Or maybe I just need to learn to let go, take a deep breath and enjoy the here and now. That's really all we have anyways.
This is the story of our journey with our baby Maxwell and life without him. His time with us was far too short, but he touched many people and taught us so much.
Our family
Monday, April 11, 2016
Spring 2015 thoughts and rants
Some days I wish that we had a 'normal' life.... You know, cause that exists! My favorite comment to people who talk about normal anything is that meme I've seen going around...
It's so true, really...
Anyways, I guess by 'normal' I mean that it would be nice not to have to explain my child's obsession with talking about death. At the playground a scrapped knee turns into "Oh no there's blood! I don't wanna go to Heaven mom!" Wow! Oh my, we've got some talking to do.... In the meantime, how much info do I need to give to calm him down? "No honey, you aren't going to die." But also, how much is too much?
An interesting lunch time conversation went something like this....
"well I'm a grown up so that means I'm all done growing."
a few moments later he says,
"mom, you're going to be the first to die....."
"oh really, why do you say that?"
As I'm completely terrified for a second, thinking.......
Eeeeeek!
"because, you're a grown up, so you'll die first..." Still totally deadpan, as if this is nothing more than a fact....
"Oh, well....I am a grown up, but I'm not so old.... I might live a very long time yet, maybe until I'm even a hundred years old!"
Who has to have these conversations with their children? From what I can tell it's only other families who've experienced death in their immediate families, and for little guys it's just so frank. So much less emotional, especially if they were too young to really remember the person or if they person they lost was a baby that they never really had the opportunity to know. They understand that there is sadness and sometimes anger and frustration, and that the sadness is associated with a death. And so there are questions about death and so much conversation.
Sometimes it's very uncomfortable, but sometimes I wonder if it isn't a better preparation for the real world than families who make death a taboo thing to talk about. It is, after all, a normal part of life.
Oliver was two and a half when we lost Max, I didn't think it had a huge impact on him.... but over time I realized that in small ways he was communicating things to me as he could. For the first six months or so he was upset if anyone so much as sniffled, we all got a cold that winter and whenever I blew my nose he was worried that 'mama sad?'. It's been a struggle for me, learning that he certainly picked up more than I thought he did about our experience losing Max. It comes out in bits and pieces and as he brings things up I've been learning to let him talk and try to answer his questions while being very reassuring about death. We've spent a lot of time emphasizing that most people don't die until they are very old.... and wondering about just how much he worries about this kind of thing.
It's so true, really...
Anyways, I guess by 'normal' I mean that it would be nice not to have to explain my child's obsession with talking about death. At the playground a scrapped knee turns into "Oh no there's blood! I don't wanna go to Heaven mom!" Wow! Oh my, we've got some talking to do.... In the meantime, how much info do I need to give to calm him down? "No honey, you aren't going to die." But also, how much is too much?
An interesting lunch time conversation went something like this....
"well I'm a grown up so that means I'm all done growing."
a few moments later he says,
"mom, you're going to be the first to die....."
"oh really, why do you say that?"
As I'm completely terrified for a second, thinking.......
Holy shit! Even his tone of voice was on point, this kid could act in horror movies.
Oh my God, is he going to kill me in my sleep!?!?
"Sleep with one eye open, bitch!"Eeeeeek!
"because, you're a grown up, so you'll die first..." Still totally deadpan, as if this is nothing more than a fact....
"Oh, well....I am a grown up, but I'm not so old.... I might live a very long time yet, maybe until I'm even a hundred years old!"
Who has to have these conversations with their children? From what I can tell it's only other families who've experienced death in their immediate families, and for little guys it's just so frank. So much less emotional, especially if they were too young to really remember the person or if they person they lost was a baby that they never really had the opportunity to know. They understand that there is sadness and sometimes anger and frustration, and that the sadness is associated with a death. And so there are questions about death and so much conversation.
Sometimes it's very uncomfortable, but sometimes I wonder if it isn't a better preparation for the real world than families who make death a taboo thing to talk about. It is, after all, a normal part of life.
Oliver was two and a half when we lost Max, I didn't think it had a huge impact on him.... but over time I realized that in small ways he was communicating things to me as he could. For the first six months or so he was upset if anyone so much as sniffled, we all got a cold that winter and whenever I blew my nose he was worried that 'mama sad?'. It's been a struggle for me, learning that he certainly picked up more than I thought he did about our experience losing Max. It comes out in bits and pieces and as he brings things up I've been learning to let him talk and try to answer his questions while being very reassuring about death. We've spent a lot of time emphasizing that most people don't die until they are very old.... and wondering about just how much he worries about this kind of thing.
Thursday, August 27, 2015
Max's 3rd Birthday in heaven
We've just celebrated Max's 3rd birthday in heaven and I'm moving in my grief journey....moving on, moving forward, parallel... who knows, but I'm moving.
The last few months has been better in many ways, but also more difficult in others. As I find myself embracing the growth and progress of the other two, even being able to let go a bit, embrace that they do get to enjoy life and trying to let go enough to let them.... to not bubble wrap them... I also find myself seeing Max in other children. I knew so many babies born that same year, right around the time he was... I never used to let myself compare them, I was always reminding myself that he would have been very sick if he'd lived and couldn't have lived so there was no point in going there.... but I can't seem to stop myself now...
Maybe it's because when the grief was just too raw I couldn't even let myself think that, but now that it's mellowed, more bittersweet and not always so intense.... I see him in those kids and sometimes my heart lurches into my throat....and I let myself wonder, daydream really about how a sweet little boy like that might fit into the hole in our family....
Anyways, it's three years since I held him... Smelled his sweet head and kissed his soft cheeks.... and I still think of him everyday, always...I'm pretty sure I will still feel like this, even fifty years from now.
Happy Birthday my sweet boy!
The last few months has been better in many ways, but also more difficult in others. As I find myself embracing the growth and progress of the other two, even being able to let go a bit, embrace that they do get to enjoy life and trying to let go enough to let them.... to not bubble wrap them... I also find myself seeing Max in other children. I knew so many babies born that same year, right around the time he was... I never used to let myself compare them, I was always reminding myself that he would have been very sick if he'd lived and couldn't have lived so there was no point in going there.... but I can't seem to stop myself now...
Maybe it's because when the grief was just too raw I couldn't even let myself think that, but now that it's mellowed, more bittersweet and not always so intense.... I see him in those kids and sometimes my heart lurches into my throat....and I let myself wonder, daydream really about how a sweet little boy like that might fit into the hole in our family....
Anyways, it's three years since I held him... Smelled his sweet head and kissed his soft cheeks.... and I still think of him everyday, always...I'm pretty sure I will still feel like this, even fifty years from now.
Happy Birthday my sweet boy!
Three little monkeys.... a post I was working on a while ago
It's been a long time since I've written anything. I've been really busy, but also changing...moving along in my grief journey.
Some days I'm not sure how to live this life, this 'normal' life that I'm supposed to have. To most people it must look like a picture perfect, white picket fence kind of life. And I feel like I'm supposed to live up to that somehow, I'm supposed to be happy, satisfied....the picture of joy and wonder. Why wouldn't I be, after all, we have the perfect family...a boy and a girl. The list could go on about what is just right with my life, but if I wanted to list what isn't just right about my life I could make an equally long list. Mostly I try to focus on what I have to be happy about and mostly I am so very happy. Sometimes though, sometimes I can't help but think about what I'm missing, who I'm missing and how our family is missing him. I wonder how life would be with three kids, I wonder how they all would interact and play together. I want so badly to have that...to have three little monkeys giggling on the floor together.
My husband is always quick to remind me that we wouldn't have gone on to have Madeline if Maxwell would have lived and I know this, I know that we probably never would have had all three of them.... but I did, I did give birth to three beautiful babies and I did hold each of them. And I wanted to raise all three of them, I want to know what our life would have been like in this parallel universe. I want it all.
Some days I'm not sure how to live this life, this 'normal' life that I'm supposed to have. To most people it must look like a picture perfect, white picket fence kind of life. And I feel like I'm supposed to live up to that somehow, I'm supposed to be happy, satisfied....the picture of joy and wonder. Why wouldn't I be, after all, we have the perfect family...a boy and a girl. The list could go on about what is just right with my life, but if I wanted to list what isn't just right about my life I could make an equally long list. Mostly I try to focus on what I have to be happy about and mostly I am so very happy. Sometimes though, sometimes I can't help but think about what I'm missing, who I'm missing and how our family is missing him. I wonder how life would be with three kids, I wonder how they all would interact and play together. I want so badly to have that...to have three little monkeys giggling on the floor together.
My husband is always quick to remind me that we wouldn't have gone on to have Madeline if Maxwell would have lived and I know this, I know that we probably never would have had all three of them.... but I did, I did give birth to three beautiful babies and I did hold each of them. And I wanted to raise all three of them, I want to know what our life would have been like in this parallel universe. I want it all.
Monday, September 8, 2014
Maxwell's Birthday Fundraiser

What a blast we had planning and executing Max's birthday fundraiser and it was a huge success! It was truly a labor of love in his name and we really enjoyed having something that allowed us so much focus on him.
We chose to raise funds for the Kinsmen Foundation because we love their dedication to helping local families in need. They helped us travel to Toronto to see doctors when Max was diagnosed in utero with a congenital diaphragmatic hernia. They covered our travel and accommodation costs and were willing to continue to do so for as long as we needed to be there. They really do understand just how stressful it is for families in these situations and they did their best to make things as easy as possible for us.
So we wanted to help them to continue to help others in memory of our sweet little Max. We held our fundraiser at Schryer's Smoked BBQ house in Saskatoon on August 24th and almost one hundred people attended! There were silent auction items and door prizes and a 50/50 draw, it was fantastic and the food was great!
Thanks to everyone who helped us celebrate Maxwell's second birthday in heaven and thanks for helping us raise funds for such a good cause!
Monday, June 2, 2014
Maxwell Bear
We had heard about a wonderful organization that makes bears to the
weight your baby was, they are called Molly Bears, each bear is hand
made and everything is done by donation. Our Maxwell Bear came just the
other day, what a jumble of emotions to hold his precious weight again!
I'm in the middle of planning his second birthday/angelversary extravaganza and there is so much focus on him right now and having his bear, as a physical representation of him that I can cuddle.... It's just so special. I'm really having a great time planning everything and I love that this gives me an excuse to spend time focusing on my Max.
I snuggle my Max Bear at least once a day and now so can his brother and sister, thanks again Molly Bears!
I'm in the middle of planning his second birthday/angelversary extravaganza and there is so much focus on him right now and having his bear, as a physical representation of him that I can cuddle.... It's just so special. I'm really having a great time planning everything and I love that this gives me an excuse to spend time focusing on my Max.
I snuggle my Max Bear at least once a day and now so can his brother and sister, thanks again Molly Bears!
Wednesday, January 29, 2014
ABC, 123, baby you and me!
I can't think of any better way to explain this than this. Having Madeline, adding to our family again....I feel like part of my alphabet is missing or the number two from my count. I have baby one and baby three here and somehow that adds up to two... But I don't have two kids, I have three.
I can see so clearly the hole that Max left in our family. There is a size missing between my great big three and a half year old and this new baby, there should be a one and a half year old too.
And now, having Madeline, I can't help to notice all of the things that we missed out on with Max. All of these thoughts that I wouldn't let myself have, the places I tried to avoid going... I can't watch Madeline doing all of these things and not think about how he didn't have the chance to do them. Thinking about what he would have looked like smiling and how he would have sounded if he could have cried or cooed. It's like I can't move forward with my family without devoting some time to his memory and who he could have been.
It's painful. It is cracking open the grief all over again, but it's probably a good thing. I think in a way it's healing too.
I will always feel that someone is missing from our family, this void will always be here. While I do sometimes answer that I have two kids, I feel like I'm lying. I feel like people must know or see through my answer as I stutter over the number, because it just doesn't add up.
I can see so clearly the hole that Max left in our family. There is a size missing between my great big three and a half year old and this new baby, there should be a one and a half year old too.
And now, having Madeline, I can't help to notice all of the things that we missed out on with Max. All of these thoughts that I wouldn't let myself have, the places I tried to avoid going... I can't watch Madeline doing all of these things and not think about how he didn't have the chance to do them. Thinking about what he would have looked like smiling and how he would have sounded if he could have cried or cooed. It's like I can't move forward with my family without devoting some time to his memory and who he could have been.
It's painful. It is cracking open the grief all over again, but it's probably a good thing. I think in a way it's healing too.
I will always feel that someone is missing from our family, this void will always be here. While I do sometimes answer that I have two kids, I feel like I'm lying. I feel like people must know or see through my answer as I stutter over the number, because it just doesn't add up.
Friday, December 27, 2013
Max's little sister!
Oliver is ecstatic with 'his baby'! He calls her Baby Madeline, which sounds like Baby Melon when he says it...lol, a memory for her baby book.
These first few weeks home have broken open the grief all over again. All of these firsts that we never got to have with Max and how she looks so much like he did. I'm struggling with so many emotions, from being so happy and totally infatuated with her to guilt and anger and frustration about why her and not Max. Why does she get to be here and not him? There is simply no answer to that question that will ever satisfy me.
As if it's not difficult enough adding a family member and adjusting with a new baby, but to throw in all of this grief and guilt and anger... What a mess!
We feel so very blessed to have our two sweet babes here, but what we wouldn't give to have all three of our children in our arms.
Saturday, November 16, 2013
Come on baby Madeline!
I'm actually sitting here having mild contractions, but this has been happening off and on for almost a week now. While I'm only 38 weeks now, this false labour is making me crazy... I wish it would just start or stop already. Also, I'm very anxious to meet this baby and have her safely in my arms. This anxiety is pretty normal I guess, I thought that things would be better after the ultrasound and knowing that the baby seems healthy... It did help a bit, but I'm very aware of all sorts of things that could go wrong and I don't know that that worry will ever go away. Somehow I feel like being able to hold her and see her will help, but I know that I'll still worry. As it is I worry myself sick about Oliver... Andrew often tells me I can't keep him in bubble wrap forever!
Anyways, I've been talking to Maddy and telling her to hurry up... Today I thought I'd try Max, so I told him to tell his little sister to come out and meet us. Maybe that's why she's being so stubborn, she's hanging out with him...
Anyways, I've been talking to Maddy and telling her to hurry up... Today I thought I'd try Max, so I told him to tell his little sister to come out and meet us. Maybe that's why she's being so stubborn, she's hanging out with him...
Friday, October 25, 2013
Before and After
I think I will always think of my life as Before and After Max,
especially the date of his diagnosis and the date of his birth and
death. When I look back these are some of the most truly defining
moments for us as a family. There is the general history of us, dating,
our marriage, becoming parents, all normal and wonderful things and
while I may have thought that these were life defining at the time....now they pale in comparison to the solid line drawn in my mind of Before and After.
Max's diagnosis and death forever changed my view of the world, in a way that I'm still learning about today. It's one thing to see terrible things happen in others' lives, to know that it's possible, but to still feel like those horrible things can't happen to us or any of my loved ones.
Slowly but surely life has settled into a new normal for us, but that defining line is drawn in my mind.... If someone talks about a past event or even if I look back a pictures of us, my immediate thought is that was either Before or After... The loss of our precious Max was truly the loss of innocence.
Max's diagnosis and death forever changed my view of the world, in a way that I'm still learning about today. It's one thing to see terrible things happen in others' lives, to know that it's possible, but to still feel like those horrible things can't happen to us or any of my loved ones.
Slowly but surely life has settled into a new normal for us, but that defining line is drawn in my mind.... If someone talks about a past event or even if I look back a pictures of us, my immediate thought is that was either Before or After... The loss of our precious Max was truly the loss of innocence.
Happy 1st Birthday in heaven Baby Max!
This was really a day of mixed emotions for me. I didn't want the celebration to be sad and I'm so glad that it really was a joyful gathering of family and friends. However, the days leading up to it were difficult and so full of memories of labour starting, the waiting and worrying and the precious little time we had with him. It was so hard to believe it had been a year, somedays it still feels like yesterday...
Instead of pictures of a one year old, I will share pictures of the celebration and some of the beautiful gifts we got as memorials.
Happy Birthday little Max, hope our wishes found you in heaven.
Love always,
Mommy
Friday, August 16, 2013
Two boys and one girl
I thought I'd write about this as it has come up a few times recently for myself and a few others that I know.
I am and always will be a mother of two boys and one girl, that is how I think of myself. I have three children, one of them is no longer with me but I will always be his mother.
I know that most people just don't mention or don't want to bring Max up for fear of upsetting me. Don't worry, you won't. If I cry when you mention him, thank you for the opportunity to remember him. I won't ever forget that I have two sons, he is never far from my mind.
If you think I seem to be having a good day and you don't want to remind me...don't worry, it's not like I ever forget, even for a second, I'm just getting better at life again. And if I do cry, it wasn't you who made me, it was the loss of my child...and maybe I really needed to cry today.
I just want to clear this up, and I think I speak for many when I say that we appreciate remembrance of our children and will always think of ourselves as their mothers, whether they are here or not. Someone who has lost their only child is still a parent, likewise I will always think of myself as a mother of three.
I know that this is a touchy subject for many who have lost children, especially babies. When someone asks how many kids you have and how old they are....what do you say? Sometimes we go into detail (and people are sorry they asked), sometimes we don't, but we never forget. Sometimes filling out forms is awkward, there isn't always space or need for lengthy explanation....but we will never forget our child who is no longer with us.
Please don't feel like you shouldn't remember my child or mention him to me, he was and always will be a part of my life. His brief life meant as much to me as the lives of my other children, we just didn't have enough time together. It is what it is, denying that I ever had him will not change the fact that I lost my son. I choose to honour his memory instead.
Saturday, July 6, 2013
Happy, healthy rainbow baby!
The D-day ultrasound went off without a hitch! Of course the technician couldn't tell us anything herself but by how quickly she was done scanning, I was pretty reassured that things were ok. The doctor and resident came in a little while later, went over everything again and explained that the baby looked perfect. She even rescanned the diaphragm to show us that everything was in place (I couldn't really make any if it out). Then she asked if we wanted to know the sex, which we did. We wanted to know absolutely everything, if they could tell me hair and eye colour too that would have been great! So she scanned a little more and settled on a picture, then pointed out that those were little girl parts! This picture was as clear as a bell to me. Such good and happy news about our rainbow baby, what a blessing! This mama's full of mixed emotions right now, very bittersweet.
Monday, July 1, 2013
Happy Canada Day!
July first, the eve of the big D-day ultrasound (as I've come to call it) and Happy Canada Day! As we enjoyed the beautiful weather today, hanging laundry on the line and lamenting that this is one of the last times for that with the move coming up, I was also remembering the day we moved in here. July first six years ago, we will move out after having lived here for six years and 15 days - give or take.
I can't help but to think how innocent and naive we were six years ago, those six years have been some of the best and worst of our lives. I think people often say that line, but most likely don't mean it as seriously as we do.
Anyways, we decided to stay close to home and pack and try to stay cool as our way of celebrating Canada Day. I've also been having a really tough time with the rapidly approaching ultrasound. It's been easy enough to put out of my mind, since there was nothing I could do about it, but now....it's driving me crazy. My nerves are very much on edge.
We went to an outdoor pool this evening for a quick dip and while I waited for Oliver and Andrew at the bottom of the water slide I had one of those moments where the grief hits you like a ton of bricks. I thought, if things go badly tomorrow I know that the world will go on, but now I also know how empty things will feel. This move to the new house, with the extra bedroom that I've started planning for the baby....it will all happen, but it will feel so...useless and empty. I know that feeling, I know about having to take those steps forward even when it feels like your world is crumbling around you....I know that I will get through it if I have to again, but I pray that God won't send us there again and that He won't put another baby through this.
I can't help but to think how innocent and naive we were six years ago, those six years have been some of the best and worst of our lives. I think people often say that line, but most likely don't mean it as seriously as we do.
Anyways, we decided to stay close to home and pack and try to stay cool as our way of celebrating Canada Day. I've also been having a really tough time with the rapidly approaching ultrasound. It's been easy enough to put out of my mind, since there was nothing I could do about it, but now....it's driving me crazy. My nerves are very much on edge.
We went to an outdoor pool this evening for a quick dip and while I waited for Oliver and Andrew at the bottom of the water slide I had one of those moments where the grief hits you like a ton of bricks. I thought, if things go badly tomorrow I know that the world will go on, but now I also know how empty things will feel. This move to the new house, with the extra bedroom that I've started planning for the baby....it will all happen, but it will feel so...useless and empty. I know that feeling, I know about having to take those steps forward even when it feels like your world is crumbling around you....I know that I will get through it if I have to again, but I pray that God won't send us there again and that He won't put another baby through this.
Thursday, June 6, 2013
Distractions
So we decided to list our house and look into moving. 'We're in no rush. Price it a little high' we told him... and it sold the very first day. Thankfully we found the house we wanted and managed to get it. We move in about a month! This all happened in the last two weeks, talk about a distraction.
So converging on us is July 10th: Oliver's birthday, moving day and 20 weeks pregnant (which means the ultrasound to rule out CDH). I should be fairly distracted in the coming weeks and have certainly had much less time to sit and worry about the odds, the chances and whatever else could go wrong. A blessing in disguise, I guess you could call it.
We are very much looking forward to the new house and Oliver's birthday. There is lots to plan and do, shopping for new appliances and window treatments and planning a birthday party. Oliver is excitedly awaiting his John Deere digger that he's picked out for his birthday, but we told him it will be there when we get to the new house. Tonight he decided he didn't want to sleep here anymore, he just wants to go to the new house and see his tractor! I think tomorrow we will have to make a count down calendar to help him understand the time frame...might help mommy too!
Busy, busy, busy....
So converging on us is July 10th: Oliver's birthday, moving day and 20 weeks pregnant (which means the ultrasound to rule out CDH). I should be fairly distracted in the coming weeks and have certainly had much less time to sit and worry about the odds, the chances and whatever else could go wrong. A blessing in disguise, I guess you could call it.
We are very much looking forward to the new house and Oliver's birthday. There is lots to plan and do, shopping for new appliances and window treatments and planning a birthday party. Oliver is excitedly awaiting his John Deere digger that he's picked out for his birthday, but we told him it will be there when we get to the new house. Tonight he decided he didn't want to sleep here anymore, he just wants to go to the new house and see his tractor! I think tomorrow we will have to make a count down calendar to help him understand the time frame...might help mommy too!
Busy, busy, busy....
Paddling up the river Denial...
I can't pretend anymore.... I've taken every kind of pregnancy test available and today the doctor confirmed it. For a little longer I think I'll live in denial, reality is too scary to ponder. To protect my heart (and sanity) I will continue as if nothing has changed. There may be a rainbow on the way, but I can't see it clearly yet.
Wow, I wrote that almost 3 months ago.... I'm pretty much over living in denial, my pants don't fit and the other day not only did I feel the baby move, I felt it from the outside. Ya, I guess I'm pregnant.
Some days it's still a little too fresh, too much of a reminder of Max, so denial is helpful...I may weave in and out of denial until the very end, who knows. The fact is it's a defense mechanism, it's too difficult to allow myself to be very hopeful. While I know that the odds are in our favor that everything will go well, to a parent who's lost an infant... giving them above 99% odds of a positive outcome seems like the reverse. That less than 1% chance is so gapingly huge, we know...we've been in it and now have so many friends who have too.
There are still a few weeks before they can rule out CDH and the waiting is torturous. I'm also all too aware of all the other things that can go wrong, having met so many people who've lost babies. It's no longer just our hurdle to get over, but also everyone else's as well.
Denial was helping me to protect myself from becoming attached to the idea that we might actually get to have a baby that we get to bring home and watch grow up.... and also from the guilt associated with wanting that, because it won't be Max. What a mixed bag of emotions!
I am finding that I'm more open to the idea, I wouldn't say excited, but certainly attached to the baby...with an awareness that nothing is forever, not our lives or our children's. Once again I leave myself and my child in HIS hands and pray that this child has a chance at life.
Wow, I wrote that almost 3 months ago.... I'm pretty much over living in denial, my pants don't fit and the other day not only did I feel the baby move, I felt it from the outside. Ya, I guess I'm pregnant.
Some days it's still a little too fresh, too much of a reminder of Max, so denial is helpful...I may weave in and out of denial until the very end, who knows. The fact is it's a defense mechanism, it's too difficult to allow myself to be very hopeful. While I know that the odds are in our favor that everything will go well, to a parent who's lost an infant... giving them above 99% odds of a positive outcome seems like the reverse. That less than 1% chance is so gapingly huge, we know...we've been in it and now have so many friends who have too.
There are still a few weeks before they can rule out CDH and the waiting is torturous. I'm also all too aware of all the other things that can go wrong, having met so many people who've lost babies. It's no longer just our hurdle to get over, but also everyone else's as well.
Denial was helping me to protect myself from becoming attached to the idea that we might actually get to have a baby that we get to bring home and watch grow up.... and also from the guilt associated with wanting that, because it won't be Max. What a mixed bag of emotions!
I am finding that I'm more open to the idea, I wouldn't say excited, but certainly attached to the baby...with an awareness that nothing is forever, not our lives or our children's. Once again I leave myself and my child in HIS hands and pray that this child has a chance at life.
Monday, June 3, 2013
Well we're into May now... Sheesh time flies. We passed our first first...the anniversary of Max's diagnosis was April 26th. I'll never forget that day. I was scanning through Facebook posts of complaints about how ugly the weather was and thought about how nice it was the year before. What a beautiful sunny day it was, I went to my early morning appointment in sandals and capris and left my sweater at home. I was so excited to find out the baby's sex and had absolutely no idea that anything could be wrong. I'll never look at life through those rose coloured glasses again.
The other day I caught myself thinking it has been six months since Max was born, then I realized it's actually been almost nine. Almost nine months, he's been gone for almost as long as we had him. Wow!
I don't know when I stopped paying attention to the passage of time, I guess it got too painful to think about. I still don't like to think about it. It means it's been longer and longer since I've held him and it will still be such a long time until I can again. I will forever wait to see his face again.
We released balloons for him with the family on Mother's Day weekend. We really liked writing him notes and sending them to heaven. It's something we will do on his angelversary too, another first anniversary that's coming much too quickly.
The other day I caught myself thinking it has been six months since Max was born, then I realized it's actually been almost nine. Almost nine months, he's been gone for almost as long as we had him. Wow!
I don't know when I stopped paying attention to the passage of time, I guess it got too painful to think about. I still don't like to think about it. It means it's been longer and longer since I've held him and it will still be such a long time until I can again. I will forever wait to see his face again.
We released balloons for him with the family on Mother's Day weekend. We really liked writing him notes and sending them to heaven. It's something we will do on his angelversary too, another first anniversary that's coming much too quickly.
Monday, March 25, 2013
Rantings.....
Today I am looking through the pictures from the day Max was born and as I'm sitting here crying all over the computer the phone rings, it's the genetic counselor wanting to book an appointment. I'm trying to compose myself and tell her that we'd like to meet with them and discuss their findings (even thought I'm sure there isn't any new news), but they'll give us an idea of chances of having another child with CDH. She starts telling me how sorry she is for my loss and asking me if I've been doing ok and saying how she knows that anniversaries of certain dates can be difficult and even just getting a phone call about this can be difficult. What are the chances that she calls and wants to talk about this just as I'm bawling all over the place? Seriously!
Anyways, I feel like we failed him as parents. That's what I was thinking, looking at the pictures. Why couldn't he have been healthy? I don't even ask what did I do that caused this because I know that I can't find an answer, but I'm his mom... I was supposed to be able to bring him into this world safely and I was supposed to be able to kiss all his boo boos and make everything ok. I couldn't fix him, nothing I could do could make him better. I'm so sorry baby Max, I'm so sorry mommy couldn't make you better. That is probably the worst feeling a parent could ever have.
Some days it makes me hate the world. Anyone watch Grey's Anatomy? Some days I think I would be like Meredtih Grey if I were to have another baby, absolutely no faith in my own ability to carry and grow a healthy child. I have a hostile uterus.
Anyways, I feel like we failed him as parents. That's what I was thinking, looking at the pictures. Why couldn't he have been healthy? I don't even ask what did I do that caused this because I know that I can't find an answer, but I'm his mom... I was supposed to be able to bring him into this world safely and I was supposed to be able to kiss all his boo boos and make everything ok. I couldn't fix him, nothing I could do could make him better. I'm so sorry baby Max, I'm so sorry mommy couldn't make you better. That is probably the worst feeling a parent could ever have.
Some days it makes me hate the world. Anyone watch Grey's Anatomy? Some days I think I would be like Meredtih Grey if I were to have another baby, absolutely no faith in my own ability to carry and grow a healthy child. I have a hostile uterus.
Monday, March 4, 2013
All you can do is try
Wow, it's March already...time flies. I can't believe how quickly this winter is passing. I was so worried that these would be horribly dark days, I really thought that this would push me over the edge into postpartum depression. I suppose, given my circumstances, it wouldn't be a huge shock if it happened. I do feel depressed sometimes, but nothing like I felt after Oliver was born, thank goodness. I look back now and think it's almost comical that I was such a mess after he was born because I wanted to be happy and I was so immediately in love with him, I had every reason to not be depressed then and absolutely every reason to be depressed now.... Then again, I know that that was a true depression, nothing I did helped and there was no way out. I needed medication and I hated that.
I hate that people start to assume that if I talk about being upset or depressed now, that I might need medication.... I have bad days, it's normal. I'm grieving, that is healthy. I don't want to medicate myself so that I'm numb to the feelings. I do enough myself, just trying to stay so busy so that I don't have too much time to think.
I did decide to go back to school, just one class at a time. I'm going to work towards finishing my education degree. It may take me until I'm forty, but at least I'm doing something. I'm also really enjoying the class I'm taking right now.
I have Oliver in swimming lessons and I'm working two nights a week and Saturdays. I am busy enough that some days I feel like I can't see straight, that's how I like it. Hence the semi monthly entries, if I'm lucky....
Anyways, on top of everything it's time to think about trying again, if we are going to have another baby. While I sometimes feel like after everything we've been through, we could take on the world, then again...maybe not. Maybe I should be happy with what we have and not ask for anything more. Maybe I'm just a coward, maybe I can't do it all. Lord knows, I've been knocked down a few times..... Maybe I'll leave it in His hands.
I hate that people start to assume that if I talk about being upset or depressed now, that I might need medication.... I have bad days, it's normal. I'm grieving, that is healthy. I don't want to medicate myself so that I'm numb to the feelings. I do enough myself, just trying to stay so busy so that I don't have too much time to think.
I did decide to go back to school, just one class at a time. I'm going to work towards finishing my education degree. It may take me until I'm forty, but at least I'm doing something. I'm also really enjoying the class I'm taking right now.
I have Oliver in swimming lessons and I'm working two nights a week and Saturdays. I am busy enough that some days I feel like I can't see straight, that's how I like it. Hence the semi monthly entries, if I'm lucky....
Anyways, on top of everything it's time to think about trying again, if we are going to have another baby. While I sometimes feel like after everything we've been through, we could take on the world, then again...maybe not. Maybe I should be happy with what we have and not ask for anything more. Maybe I'm just a coward, maybe I can't do it all. Lord knows, I've been knocked down a few times..... Maybe I'll leave it in His hands.
Friday, February 15, 2013
My Funny Valentines
I hope everyone had a wonderful Valentine's Day! We had a very busy day of friends, playdates and coffee for Mama and we served heart-shaped cookies that Oliver helped decorate! Andrew stopped by on his lunch break to deliver me a beautiful bouquet of flowers (I'm surprised he braved the playdate hoopla).
I am working at being positive and feeling better, being more active and looking forward to spring. The sixth month mark is approaching and the discussion on trying again has begun.... I have really mixed feelings here.
I suppose I thought I would be more apprehensive or anxious, but I am just completely settled with the notion that I have no control....so what's the point? I am letting go of the wheel (as if I was ever truly steering). Que sera sera.
On another note, I feel very blessed to have my little Oliver in my life. While he sometimes (often) has me tearing my hair out, he is the sweetest little boy there ever was! Tonight we were snuggled on the couch, watching Madagascar and eating grapes and he jumped up and said, "Olvee so happy, wuv my Mama Dada!". Heart melting, Mama loves you too!
I am working at being positive and feeling better, being more active and looking forward to spring. The sixth month mark is approaching and the discussion on trying again has begun.... I have really mixed feelings here.
I suppose I thought I would be more apprehensive or anxious, but I am just completely settled with the notion that I have no control....so what's the point? I am letting go of the wheel (as if I was ever truly steering). Que sera sera.
On another note, I feel very blessed to have my little Oliver in my life. While he sometimes (often) has me tearing my hair out, he is the sweetest little boy there ever was! Tonight we were snuggled on the couch, watching Madagascar and eating grapes and he jumped up and said, "Olvee so happy, wuv my Mama Dada!". Heart melting, Mama loves you too!
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